Editing Endometriosis (section)

==Society and culture==
===Public figures===
Several public figures have spoken about their experience with endometriosis, including:
{{div col |colwidth=20em}}
* [[RuthAnne]]<ref>{{cite web |vauthors=Gallagher K |date=31 March 2021 |title=Irish songwriter Ruth Anne opens up on her debilitating fight with endometriosis |url=https://www.irishmirror.ie/showbiz/irish-songwriter-ruthanne-opens-up-23831453 |access-date=11 April 2023 |website=Irish Mirror |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411192710/https://www.irishmirror.ie/showbiz/irish-songwriter-ruthanne-opens-up-23831453 |url-status=live }}</ref>
* [[Emma Barnett]]<ref>{{cite web|url=https://www.theguardian.com/commentisfree/2020/oct/22/endometriosis-women-pain-diagnosis-report-mps|title=Endometriosis showed me we need better ways to talk about women's pain &#124; Emma Barnett|website=[[TheGuardian.com]]|date=22 October 2020}}</ref>
* [[Emma Bunton]]<ref>{{cite web |url=https://www.her.ie/entertainment/nearly-broke-spice-girls-emma-bunton-describes-struggling-conceive-endometriosis-491098 |title='Nearly broke me' Spice Girls' Emma Bunton describes struggling to conceive with endometriosis |work=[[Her.ie]] |date=11 May 2020 |access-date=28 May 2021 | vauthors = Hayden J }}</ref>
* [[Alexa Chung]]<ref>{{cite web |date=18 July 2019 |title=Alexa Chung Reveals Her Battle With Endometriosis—And Taps Into an Empowering Online Community |url=https://www.vogue.com/article/alexa-chung-endometriosis-battle-instagram-community |access-date=11 April 2023 |website=Vogue |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411192807/https://www.vogue.com/article/alexa-chung-endometriosis-battle-instagram-community |url-status=live }}</ref>
* [[Danielle Collins]]<ref>{{cite news|url=https://www.wtatennis.com/news/2211449/champions-corner-collins-unleashes-the-best-tennis-of-her-career-after-life-changing-surgery|title=Champions Corner: Collins unleashes the best tennis of her career after life-changing surgery|website=Women's Tennis Association|access-date=3 March 2022|archive-date=2 February 2022|archive-url=https://web.archive.org/web/20220202222551/https://www.wtatennis.com/news/2211449/champions-corner-collins-unleashes-the-best-tennis-of-her-career-after-life-changing-surgery|url-status=live}}</ref>
* [[Olivia Culpo]]<ref>{{cite magazine |title=Watch: Olivia Culpo Shares Emotional Details of Her Endometriosis Journey |url=https://lifestyle.si.com/wellness/olivia-culpo-shares-endometriosis-journey |magazine=Sports Illustrated}}</ref>
* [[Lena Dunham]]<ref>{{cite web |title=Lena Dunham Gives Health Update Following Battle with Endometriosis |website=People |url=https://people.com/celebrity/lena-dunham-gives-health-update-following-battle-with-endometriosis/ |access-date=11 April 2023 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191944/https://people.com/celebrity/lena-dunham-gives-health-update-following-battle-with-endometriosis/ |url-status=live }}</ref>
* [[Abby Finkenauer]]<ref>{{cite web|date=5 March 2020 |title=Congresswoman Abby Finkenauer Opens Up About Her Struggle With Endometriosis |website=Glamour |url=https://www.glamour.com/story/abby-finkenauer-endometriosis-caucus|access-date=17 December 2021}}</ref>
* [[Bethenny Frankel]]<ref>{{cite web |title=EXCLUSIVE: Bethenny Frankel in Tears Over Recent Health Scare: 'I Really Tried to Hold It All Together' |website=Entertainment Tonight |url=https://www.etonline.com/news/191621_bethenny_frankel_tears_over_recent_health_scare_i_really_tried_to_hold_it_all_together |access-date=11 April 2023 |date=22 June 2016 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191944/https://www.etonline.com/news/191621_bethenny_frankel_tears_over_recent_health_scare_i_really_tried_to_hold_it_all_together |url-status=live }}</ref>
* [[Whoopi Goldberg]]<ref>{{cite web |url=https://www.endofound.org/blossom-ball-2009-whoopi-goldberg/ |title=Blossom Ball 2009 – Whoopi Goldberg |publisher=[[Endometriosis Foundation of America]] |date=27 November 2007 |access-date=21 January 2021}}</ref>
* [[Mel Greig]]<ref>{{cite news |title=Radio presenter Mel Greig's shocking photo shows reality of living with endometriosis |url=https://www.news.com.au/lifestyle/health/health-problems/radio-presenter-mel-greigs-shocking-photo-shows-reality-of-living-with-endometriosis/news-story/4638a8c8899928d4ebb8dfd82ef820a7 |work=[[News.com.au]] |date=28 March 2018 |access-date=21 January 2021 |archive-date=13 November 2018 |archive-url=https://web.archive.org/web/20181113210524/https://www.news.com.au/lifestyle/health/health-problems/radio-presenter-mel-greigs-shocking-photo-shows-reality-of-living-with-endometriosis/news-story/4638a8c8899928d4ebb8dfd82ef820a7 |url-status=live }}</ref>
* [[Halsey (singer)|Halsey]]<ref>{{cite magazine |url=https://www.billboard.com/articles/news/7647866/halsey-surgery-endometriosis/ |title=Halsey undergoes surgery to treat endometriosis |magazine=[[Billboard (magazine)|Billboard]] |date=7 January 2017 |access-date=27 November 2018 | vauthors = Iasimone A }}</ref>
* [[Emma Hayes]]<ref>{{cite web |title=Emma Hayes: Chelsea manager has emergency hysterectomy because of endometriosis |url=https://www.bbc.co.uk/sport/football/63246126 |website=BBC Sport |publisher=BBC |access-date=28 December 2022 |date=13 October 2022 |archive-date=28 December 2022 |archive-url=https://web.archive.org/web/20221228162245/https://www.bbc.co.uk/sport/football/63246126 |url-status=live }}</ref>
* [[Julianne Hough]]<ref>{{cite web |url=https://www.today.com/health/julianne-hough-endometriosis-i-just-thought-it-was-normal-t116059 |title=Julianne Hough opens up about endometriosis: 'I just thought it was normal' |work=[[Today (American TV program)|Today]] |date=9 September 2017 |access-date=21 January 2021 |vauthors=Murray R |archive-date=13 November 2018 |archive-url=https://web.archive.org/web/20181113210750/https://www.today.com/health/julianne-hough-endometriosis-i-just-thought-it-was-normal-t116059 |url-status=live }}</ref><ref>{{cite web |date=23 April 2018 |title=Julianne Hough Won't Let Endometriosis Stop Her From Having a Family With Brooks Laich: "We've Discussed Options" |url=https://www.endofound.org/julianne-hough-wont-let-endometriosis-stop-her-from-having-a-family-with-brooks-laich-weve-discussed |access-date=31 December 2023 |website=Endometriosis : Causes - Symptoms - Diagnosis - and Treatment |language=en |archive-date=31 December 2023 |archive-url=https://web.archive.org/web/20231231012944/https://www.endofound.org/julianne-hough-wont-let-endometriosis-stop-her-from-having-a-family-with-brooks-laich-weve-discussed |url-status=live }}</ref><ref>{{cite web |vauthors=Olya G |date=24 March 2017 |title=Julianne Hough Opens Up About Her Struggle with Endometriosis |url=https://people.com/health/julianne-hough-endometriosis/ |access-date=31 December 2023 |website=Peoplemag |language=en |archive-date=31 December 2023 |archive-url=https://web.archive.org/web/20231231012944/https://people.com/health/julianne-hough-endometriosis/ |url-status=live }}</ref>
* [[Bridget Hustwaite]]<ref>{{cite web |url=https://www.abc.net.au/triplej/programs/hack/pain-of-endometriosis-sucks-but-so-does-just-getting-a-diagnosis/10119888/ |title=Endometriosis: The pain sucks, but so does just getting a diagnosis |work=[[Hack (radio program)|Hack]] on [[Triple J]] |date=14 August 2018 |access-date=21 January 2021 |vauthors=Hustwaite B |author-link=Bridget Hustwaite |archive-date=18 August 2018 |archive-url=https://web.archive.org/web/20180818073027/https://www.abc.net.au/triplej/programs/hack/pain-of-endometriosis-sucks-but-so-does-just-getting-a-diagnosis/10119888/ |url-status=live }}</ref>
* [[Bindi Irwin]]<ref>{{cite news |url=https://www.abc.net.au/news/2023-03-08/bindi-irwin-reveals-struggle-with-endometriosis/102066858 |title=On International Women's Day, Bindi Irwin reveals 10-year struggle with endometriosis |vauthors=Dye J |website=Australian Broadcasting Corporation News |date=8 March 2023 |access-date=10 March 2023 |archive-date=9 March 2023 |archive-url=https://web.archive.org/web/20230309213705/https://www.abc.net.au/news/2023-03-08/bindi-irwin-reveals-struggle-with-endometriosis/102066858 |url-status=live }}</ref>
* [[Jaime King]]<ref>{{cite web |date=24 April 2022 |title=Why Jaime King Decided It Was Time to Talk About Her Years-Long Fertility Struggle |url=https://www.eonline.com/news/1327944/why-jaime-king-decided-it-was-time-to-talk-about-her-years-long-fertility-struggle |access-date=11 April 2023 |website=E! Online}}</ref>
* [[Padma Lakshmi]]<ref>{{cite web |url=https://www.youtube.com/watch?v=Gfixp0jUjKg |title=Padma Lakshmi shares her struggle with endometriosis |work=[[Redbook]] |via=[[YouTube]] |date=17 October 2011 |access-date=9 March 2021 |archive-url=https://web.archive.org/web/20201102201459/https://www.youtube.com/watch?v=Gfixp0jUjKg |archive-date=2 November 2020 |url-status=live}}</ref>
* [[Cyndi Lauper]]<ref>{{cite news |vauthors=Hajdu D |date=30 November 2012 |title='80s Pop |work=The New York Times |url=https://www.nytimes.com/2012/12/02/books/review/cyndi-lauper-a-memoir.html |access-date=11 April 2023 |issn=0362-4331 |archive-date=29 June 2017 |archive-url=https://web.archive.org/web/20170629020918/http://www.nytimes.com/2012/12/02/books/review/cyndi-lauper-a-memoir.html |url-status=live }}</ref>
* [[Jillian Michaels]]<ref>{{cite web |title=No Kidding: Jillian Michaels is Not "Doing That" to Her Body |url=https://www.bitchmedia.org/post/no-kidding-jillian-michaels-is-not-doing-that-to-her-body |access-date=11 April 2023 |website=Bitch Media |date=7 February 2011 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191944/https://www.bitchmedia.org/post/no-kidding-jillian-michaels-is-not-doing-that-to-her-body |url-status=dead }}</ref>
* [[Monica (singer)|Monica]]<ref>{{cite web |date=9 June 2021 |title=Monica's Second Surgery For Her Endometriosis Was 'Very Hard' And She 'Ended Up Having Multiple Blood Transfusions' |url=https://madamenoire.com/1230703/monica-endometriosis-2/ |access-date=11 April 2023 |website=MadameNoire |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191944/https://madamenoire.com/1230703/monica-endometriosis-2/ |url-status=live }}</ref>
* [[Marilyn Monroe]]<ref>{{cite web |vauthors=Wilson-Beevers H |date=28 September 2022 |title=Marilyn Monroe's battle with endometriosis is often ignored – but it's a vital part of her story |website=Cosmopolitan |url=https://www.cosmopolitan.com/uk/body/health/a41419168/marilyn-monroe-endometriosis/ |access-date=11 April 2023 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411195217/https://www.cosmopolitan.com/uk/body/health/a41419168/marilyn-monroe-endometriosis/ |url-status=live }}</ref>
* [[Tia Mowry]]<ref>{{cite web |vauthors=Henderson W |date=14 June 2017 |title=Tia Mowry Releases a Cookbook for Women With Endometrosis |url=https://endometriosisnews.com/2017/06/14/tia-mowry-introduces-cookbook-for-women-with-endometriosis/ |access-date=11 April 2023 |website=Endometriosis News |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191944/https://endometriosisnews.com/2017/06/14/tia-mowry-introduces-cookbook-for-women-with-endometriosis/ |url-status=live }}</ref>
* [[Sinéad O'Connor]]<ref>{{cite web |vauthors=Devereux N |url=https://vipmagazine.ie/sinead-oconnor-tells-of-illness-hell/ |title=Sinead O'Connor tells of illness hell: "I'm in a bad way" |date=19 August 2015 |access-date=5 August 2023 |archive-date=5 August 2023 |archive-url=https://web.archive.org/web/20230805193756/https://vipmagazine.ie/sinead-oconnor-tells-of-illness-hell/ |url-status=live }}</ref>
* [[Dolly Parton]]<ref>{{cite web| vauthors = Vargas A |title=12 celebrities who have opened up about having endometriosis |url=https://www.insider.com/celebrities-with-endometriosis-2019-3 |access-date=6 August 2021|website=Insider}}</ref>
* [[Florence Pugh]]<ref>{{cite web|last1=Shultz|first1=Cara Lynn|title=Florence Pugh Says It Was a 'Mind-Boggling Realization' to Learn She Had to Freeze Her Eggs at 27|url=https://people.com/florence-pugh-froze-eggs-27-pcos-endometriosis-she-md-podcast-8746962|website=People|date=19 November 2024|access-date=19 November 2024|archive-date=19 November 2024|archive-url=https://web.archive.org/web/20241119154617/https://people.com/florence-pugh-froze-eggs-27-pcos-endometriosis-she-md-podcast-8746962|url-status=live}}</ref>
* [[Daisy Ridley]]<ref>{{cite web |vauthors=Scott E |url=http://www.cosmopolitan.co.uk/entertainment/news/a43962/daisy-ridley-opened-up-about-her-struggle-with-endomitriosis/ |title=Daisy Ridley opened up about her struggle with endometriosis |work=[[Cosmopolitan (magazine)|Cosmopolitan]] |date=12 June 2016 |access-date=29 June 2021 |archive-date=8 August 2016 |archive-url=https://web.archive.org/web/20160808102649/http://www.cosmopolitan.co.uk/entertainment/news/a43962/daisy-ridley-opened-up-about-her-struggle-with-endomitriosis/ |url-status=live }}</ref>
* [[Emma Roberts]]<ref>{{cite web | publisher = Condé Nast |url=https://www.self.com/story/emma-roberts-endometriosis-pregnancy/ |title=Emma Roberts shares how her undiagnosed endometriosis affected her pregnancy journey |work=[[Self (magazine)|Self]] |date=11 November 2020 |access-date=15 July 2021}}</ref>
* [[Susan Sarandon]]<ref>{{cite web |title=EFA2011: Susan Sarandon speaks up about endometriosis |work=Endometriosis.org |url=https://endometriosis.org/news/congress-highlights/susan-sarandon-speaks-up-about-endometriosis/ |access-date=11 April 2023 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411191946/https://endometriosis.org/news/congress-highlights/susan-sarandon-speaks-up-about-endometriosis/ |url-status=live }}</ref>
* [[Amy Schumer]]<ref>{{cite web |title=Amy Schumer 'feeling good' after endometriosis surgery and liposuction |url=https://independenttribune.com/entertainment/amy-schumer-feeling-good-after-endometriosis-surgery-and-liposuction/video_b81d1935-b96d-5726-999a-83464d9cb89b.html |access-date=11 April 2023 |website=The Independent Tribune |date=20 January 2022 |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411192345/https://independenttribune.com/entertainment/amy-schumer-feeling-good-after-endometriosis-surgery-and-liposuction/video_b81d1935-b96d-5726-999a-83464d9cb89b.html |url-status=live }}</ref>
* [[Kirsten Storms]]<ref>{{cite web|date=25 December 2012|title='General Hospital': Kirsten Storms opens up about return – The TV Guy – Orlando Sentinel|url=http://blogs.orlandosentinel.com/entertainment_tv_tvblog/2012/08/general-hospital-kirsten-storms-opens-up-about-return.html|access-date=18 October 2021|archive-url=https://web.archive.org/web/20121225185503/http://blogs.orlandosentinel.com/entertainment_tv_tvblog/2012/08/general-hospital-kirsten-storms-opens-up-about-return.html|archive-date=25 December 2012}}</ref>
* [[Gabrielle Union]]<ref>{{cite web | vauthors = Haller S |title=Gabrielle Union says she probably can't get pregnant because of adenomyosis. What exactly is that? |website=USA Today |url=https://www.usatoday.com/story/life/allthemoms/2018/08/15/gabrielle-union-explains-infertility-type-endometriosis-called-adenomyosis/999052002/ |access-date=11 April 2023}}</ref>
* [[Lacey Schwimmer]]<ref>{{cite web |vauthors=((Staff Writer)) |title=Another victim of the 'Dancing With The Stars' curse |url=https://www.dispatch.com/story/news/2008/10/30/another-victim-dancing-with-stars/24005782007/ |access-date=31 December 2023 |website=The Columbus Dispatch |language=en-US |archive-date=19 January 2024 |archive-url=https://web.archive.org/web/20240119032448/https://www.dispatch.com/story/news/2008/10/30/another-victim-dancing-with-stars/24005782007/ |url-status=live }}</ref><ref>{{cite web |vauthors=Richenthal M |date=30 October 2008 |title=Lacey Schwimmer is Also Sick |url=https://www.tvfanatic.com/2008/10/lacey-schwimmer-is-also-sick/ |access-date=31 December 2023 |website=TV Fanatic |language=en |archive-date=31 December 2023 |archive-url=https://web.archive.org/web/20231231012944/https://www.tvfanatic.com/2008/10/lacey-schwimmer-is-also-sick/ |url-status=live }}</ref><ref>{{cite web |date=23 March 2017 |title=Lena Dunham, Julianne Hough and More Who've Opened Up About Endometriosis Battles: "You Don't Have to Ignore Pain" |website=E! Online |url=https://www.eonline.com/news/838260/lena-dunham-julianne-hough-and-more-who-ve-opened-up-about-endometriosis-battles-you-don-t-have-to-ignore-pain |access-date=31 December 2023 |archive-date=31 December 2023 |archive-url=https://web.archive.org/web/20231231012944/https://www.eonline.com/news/838260/lena-dunham-julianne-hough-and-more-who-ve-opened-up-about-endometriosis-battles-you-don-t-have-to-ignore-pain |url-status=live }}</ref>
* [[Chrissy Teigen]]<ref>{{cite web |vauthors=Mazziotta J |url=https://people.com/health/chrissy-teigen-endometriosis-surgery-better-than-pain/ |title=Chrissy Teigen says endometriosis surgery was 'a toughie' but better than 'the pain of endo' |work=[[People (magazine)|People]] |date=5 February 2021 |access-date=15 July 2021 |archive-date=15 July 2021 |archive-url=https://web.archive.org/web/20210715053905/https://people.com/health/chrissy-teigen-endometriosis-surgery-better-than-pain/ |url-status=live }}</ref>
* [[Emma Watkins]]<ref>{{cite web |url=https://www.perthnow.com.au/entertainment/yellow-wiggle-emma-watkins-opens-up-about-the-agony-of-endometriosis-ng-b881137647z |title=Yellow Wiggle Emma Watkins opens up about the agony of endometriosis |work=[[PerthNow]] |date=16 March 2019 |access-date=21 January 2021 |archive-date=6 February 2020 |archive-url=https://web.archive.org/web/20200206010025/https://www.perthnow.com.au/entertainment/yellow-wiggle-emma-watkins-opens-up-about-the-agony-of-endometriosis-ng-b881137647z |url-status=live }}</ref>
* [[Mae Whitman]]<ref>{{cite web |date=21 May 2020 |title=Mae Whitman: 'Endometriosis Is Like Being Shot With a Cannonball in the Stomach' |url=https://www.glamour.com/story/mae-whitman-on-navigating-a-hollywood-career-while-battling-endometriosis |access-date=11 April 2023 |website=Glamour |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411192952/https://www.glamour.com/story/mae-whitman-on-navigating-a-hollywood-career-while-battling-endometriosis |url-status=live }}</ref>
* [[Jessica Williams (actress)|Jessica Williams]]<ref>{{cite web |date=12 April 2022 |title=Jessica Williams on the 'Debilitating' Symptom That Led to Her Endometriosis Diagnosis |url=https://www.self.com/story/jessica-williams-endometriosis |access-date=11 April 2023 |website=Self |archive-date=11 April 2023 |archive-url=https://web.archive.org/web/20230411192859/https://www.self.com/story/jessica-williams-endometriosis |url-status=live }}</ref>
* [[Leah Williamson]]<ref>{{cite web |vauthors=Dervish-O'Kane R |title=Leah Williamson, captain of the Lionesses, is our January cover star |url=https://www.womenshealthmag.com/uk/health/a42306525/leah-williamson-january-2023/ |website=Women's Health |publisher=Hearst UK |access-date=28 December 2022 |date=27 December 2022 |archive-date=28 December 2022 |archive-url=https://web.archive.org/web/20221228000326/https://www.womenshealthmag.com/uk/health/a42306525/leah-williamson-january-2023/ |url-status=live }}</ref>
{{div col end}}

===Economic burden===
The economic burden of endometriosis is widespread and multifaceted.<ref name=":5">{{cite journal |vauthors=Gao X, Outley J, Botteman M, Spalding J, Simon JA, Pashos CL |title=Economic burden of endometriosis |journal=Fertility and Sterility |volume=86 |issue=6 |pages=1561–72 |date=December 2006 |pmid=17056043 |doi=10.1016/j.fertnstert.2006.06.015 |s2cid=20623034 |doi-access=free |title-link=doi}}</ref> Endometriosis is a chronic disease that has direct and indirect costs, which include loss of work days, direct costs of treatment, symptom management, and treatment of other associated conditions such as depression or chronic pain.<ref name=":5" /> One factor that seems to be associated with especially high costs is the delay between the onset of symptoms and diagnosis.

Costs vary greatly between countries.<ref>{{cite journal | vauthors = Koltermann KC, Dornquast C, Ebert AD, Reinhold T | s2cid = 32839234 | title = Economic Burden of Endometriosis: A Systematic Review | journal = Ann Reprod Med Treat | date = 2017 | volume = 2 | issue = 2m | page = 1015 }}</ref> Two factors that contribute to the economic burden include healthcare costs and losses in productivity. A Swedish study of 400 endometriosis patients found "Absence from work was reported by 32% of the women, while 36% reported reduced time at work because of endometriosis".<ref>{{cite journal | vauthors = Grundström H, Hammar Spagnoli G, Lövqvist L, Olovsson M | title = Healthcare Consumption and Cost Estimates Concerning Swedish Women with Endometriosis | language = english | journal = Gynecologic and Obstetric Investigation | volume = 85 | issue = 3 | pages = 237–244 | date = 2020 | pmid = 32248191 | doi = 10.1159/000507326 | s2cid = 214811610 | doi-access = free | title-link = doi }}</ref> An additional cross sectional study with Puerto Rican women, "found that endometriosis-related and coexisting symptoms disrupted all aspects of women's daily lives, including physical limitations that affected doing household chores and paid employment. The majority of women (85%) experienced a decrease in the quality of their work; 20% reported being unable to work because of pain, and over two-thirds of the sample continued to work despite their pain."<ref>{{cite journal | vauthors = Soliman AM, Coyne KS, Gries KS, Castelli-Haley J, Snabes MC, Surrey ES | title = The Effect of Endometriosis Symptoms on Absenteeism and Presenteeism in the Workplace and at Home | journal = Journal of Managed Care & Specialty Pharmacy | volume = 23 | issue = 7 | pages = 745–754 | date = July 2017 | pmid = 28650252 | doi = 10.18553/jmcp.2017.23.7.745 | pmc = 10398072 | doi-access = free | title-link = doi }}</ref>  A study published in the UK in 2025 found that after women received a diagnosis of endometriosis in an English NHS hospital their earnings were on average £56 per month less in the four to five years after diagnosis than they were in the two years before. There was also a reduction in the proportion of women in employment.<ref>{{cite news |last1=Snowdon |first1=Catherine |title=Women with endometriosis earn less, research shows |url=https://www.bbc.co.uk/news/articles/c0k5rp87nzlo |access-date=5 February 2025 |publisher=BBC |date=5 February 2025}}</ref>

===Medical culture===
There are many barriers that those affected face in receiving diagnosis and treatment for endometriosis. Some of these include outdated standards for laparoscopic evaluation, stigma about discussing menstruation and sex, lack of understanding of the disease, primary-care physicians' lack of knowledge, and assumptions about typical menstrual pain.<ref>{{cite journal | vauthors = As-Sanie S, Black R, Giudice LC, Gray Valbrun T, Gupta J, Jones B, Laufer MR, Milspaw AT, Missmer SA, Norman A, Taylor RN, Wallace K, Williams Z, Yong PJ, Nebel RA | title = Assessing research gaps and unmet needs in endometriosis | journal = American Journal of Obstetrics and Gynecology | volume = 221 | issue = 2 | pages = 86–94 | date = August 2019 | pmid = 30790565 | doi = 10.1016/j.ajog.2019.02.033 | s2cid = 73480251 }}</ref> On average, those later diagnosed with endometriosis waited 2.3 years after the onset of symptoms before seeking treatment, and nearly three-quarters of women receive a misdiagnosis before endometriosis.<ref>{{cite journal |vauthors=Hudelist G, Fritzer N, Thomas A, Niehues C, Oppelt P, Haas D, Tammaa A, Salzer H |title=Diagnostic delay for endometriosis in Austria and Germany: causes and possible consequences |journal=Human Reproduction |volume=27 |issue=12 |pages=3412–6 |date=December 2012 |pmid=22990516 |doi=10.1093/humrep/des316 |doi-access=free |title-link=doi}}</ref> Self-help groups say practitioners delay making the diagnosis, often because they do not consider it a possibility. There is a typical delay of 7–12 years from symptom onset in affected individuals to professional diagnosis.<ref>{{cite journal |date=December 2003 |title=Test d'auto-évaluation du JOGC |journal=Journal of Obstetrics and Gynaecology Canada |volume=25 |issue=12 |pages=1046–1051 |doi=10.1016/s1701-2163(16)30350-4 |issn=1701-2163}}</ref> There is a general lack of knowledge about endometriosis among primary care physicians. Half of the general health care providers surveyed in a 2013 study could not name three symptoms of endometriosis.<ref>{{cite journal | vauthors = Quibel A, Puscasiu L, Marpeau L, Roman H | title = [General practitioners and the challenge of endometriosis screening and care: results of a survey] | journal = Gynécologie, Obstétrique & Fertilité | volume = 41 | issue = 6 | pages = 372–80 | date = June 2013 | pmid = 22521982 | doi = 10.1016/j.gyobfe.2012.02.024 }}</ref> Healthcare providers are also likely to dismiss described symptoms as normal menstruation.<ref name="Time elapsed from onset of symptoms">{{cite journal | vauthors = Arruda MS, Petta CA, Abrão MS, Benetti-Pinto CL | title = Time elapsed from onset of symptoms to diagnosis of endometriosis in a cohort study of Brazilian women | journal = Human Reproduction | volume = 18 | issue = 4 | pages = 756–9 | date = April 2003 | pmid = 12660267 | doi = 10.1093/humrep/deg136 | doi-access = free | title-link = doi }}</ref> Younger patients may also feel uncomfortable discussing symptoms with a physician.<ref name="Time elapsed from onset of symptoms"/>

===Race and ethnicity===
Race and ethnicity may impact how endometriosis affects one's life. Endometriosis is less thoroughly studied among Black people, and the research that has been done is outdated.<ref>{{cite journal| vauthors = Shade GH, Lane M, Diamond MP |date=24 June 2011 |title=Endometriosis in the African American woman—racially, a different entity? |journal=Gynecological Surgery |volume=9 |pages=59–62 |doi=10.1007/s10397-011-0685-5 |s2cid=6288739 |doi-access=free |title-link=doi}}</ref>
<ref name=":6">{{cite journal | vauthors = Hoffman KM, Trawalter S, Axt JR, Oliver MN | title = Racial bias in pain assessment and treatment recommendations, and false beliefs about biological differences between blacks and whites| journal = Proceedings of the National Academy of Sciences of the United States of America | volume = 113 | issue = 16 | pages = 4296–301 | date = April 2016 | pmid = 27044069 | pmc = 4843483 | doi = 10.1073/pnas.1516047113 | doi-access = free | title-link = doi | bibcode = 2016PNAS..113.4296H }}</ref>
Cultural differences among ethnic groups also contribute to attitudes toward and treatment of endometriosis, especially in Hispanic or Latino communities. A study done in Puerto Rico in 2020 found that health care and interactions with friends and family related to discussing endometriosis were affected by stigma.<ref name=":8">{{cite journal | vauthors = Matías-González Y, Sánchez-Galarza AN, Flores-Caldera I, Rivera-Segarra E | title = "Es que tú eres una changa": stigma experiences among Latina women living with endometriosis | journal = Journal of Psychosomatic Obstetrics and Gynaecology | volume = 42 | issue = 1 | pages = 67–74 | date = March 2021 | pmid = 32964770 | doi = 10.1080/0167482X.2020.1822807 | pmc = 8893272 | s2cid = 221862356 }}</ref> The most common finding was a referral to those expressing pain related to endometriosis as "changuería" or "changas", terms used in Puerto Rico to describe pointless whining and complaining, often directed at children.<ref name=":8" />

=== Stigma ===
The existing stigma surrounding women's health, specifically endometriosis, can lead to patients not seeking diagnoses, lower quality of healthcare, increased barriers to care and treatment, and negative reception from members of society.<ref>{{cite journal | vauthors = Sims OT, Gupta J, Missmer SA, Aninye IO | title = Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay | journal = International Journal of Environmental Research and Public Health | volume = 18 | issue = 15 | page = 8210 | date = August 2021 | pmid = 34360501 | pmc = 8346066 | doi = 10.3390/ijerph18158210 | doi-access = free }}</ref> Additionally, [[menstrual stigma]] significantly contributes to the broader issue of endometriosis stigma, creating an interconnected challenge that extends beyond reproductive health.<ref>{{cite journal | vauthors = Kocas HD, Rubin LR, Lobel M | title = Stigma and mental health in endometriosis | journal = European Journal of Obstetrics & Gynecology and Reproductive Biology | volume = 19 | pages = 100228 | date = September 2023 | pmid = 37654520 | pmc = 10465859 | doi = 10.1016/j.eurox.2023.100228 | publisher = Elsevier BV | doi-access = free }}</ref><ref>{{cite web |vauthors=Henry JE |date=27 May 2022 |title=Period Stigma and the Unacknowledged System of Oppression |url=https://digitaleducation.stanford.edu/period-stigma-and-unacknowledged-system-oppression |access-date=24 November 2023 |website=Stanford {{!}} Digital Education |language=en |archive-date=24 November 2023 |archive-url=https://web.archive.org/web/20231124232217/https://digitaleducation.stanford.edu/period-stigma-and-unacknowledged-system-oppression |url-status=live }}</ref>
Widespread [[awareness campaign]]s, developments, and implementations aimed to multilevel anti-stigma organizational and structural changes, as well as more qualitative studies of the endometriosis stigma, help to overcome the harm of the phenomenon.<ref>{{cite journal | vauthors = Sims OT, Gupta J, Missmer SA, Aninye IO | title = Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay | journal = International Journal of Environmental Research and Public Health | volume = 18 | issue = 15 | pages = 8210 | date = August 2021 | pmid = 34360501 | pmc = 8346066 | doi = 10.3390/ijerph18158210 | doi-access = free }}</ref>