Editing Down syndrome (section)

==Prognosis==
{{Globalize|date=January 2025|2=US and Sweden|section}}[[File:Downs syndrome world map-Deaths per million persons-WHO2012.svg|thumb|upright=1.4|Deaths due to Down syndrome per million persons in 2012 {{Div col|small=yes|colwidth=10em}}{{legend|#ffff20|0}}{{legend|#ffd820|1}}{{legend|#ffc020|2}}{{legend|#ffa020|3}}{{legend|#ff9a20|4}}{{legend|#f08015|5}}{{legend|#e06815|6}}{{legend|#d85010|7–8}}{{legend|#d02010|9–16}}{{div col end}}]]
Between 5–15% of children with Down syndrome in Sweden attend regular school.<ref name=EU2006/> Some graduate from high school; however, most do not.<ref name=Stein2011/> Of those with intellectual disability in the United States who attended high school about 40% graduated.<ref>{{cite web|title=Number of 14- through 21-year-old students served under Individuals with Disabilities Education Act, Part B, who exited school, by exit reason, age, and type of disability: 2007–08 and 2008–09|url=https://nces.ed.gov/programs/digest/d11/tables/dt11_118.asp|work=National Center for Education Statistics|access-date=7 February 2014|url-status=live|archive-url=https://web.archive.org/web/20140222132619/https://nces.ed.gov/programs/digest/d11/tables/dt11_118.asp|archive-date=22 February 2014}}</ref> Many learn to read and write and some are able to do paid work.<ref name=Stein2011/> In adulthood about 20% in the United States do paid work in some capacity.<ref name=US2013/><ref>{{cite web|title=Down's Syndrome: Employment Barriers|url=http://www.rehacare.com/cipp/md_rehacare/custom/pub/content,oid,15324/lang,2/ticket,g_u_e_s_t/mcat_id,7738/local_lang,2|work=Rehab Care International|access-date=7 February 2014|url-status=dead|archive-url=https://web.archive.org/web/20140222065400/http://www.rehacare.com/cipp/md_rehacare/custom/pub/content,oid,15324/lang,2/ticket,g_u_e_s_t/mcat_id,7738/local_lang,2|archive-date=22 February 2014}}</ref> In Sweden, however, less than 1% have regular jobs.<ref name="EU2006">{{cite web|url=http://www.down-syndrome.eu/files/profiles/edsa_sweden.pdf |title=European Down Syndrome Association news |year=2006 |archive-url=https://web.archive.org/web/20140222204153/http://www.down-syndrome.eu/files/profiles/edsa_sweden.pdf |archive-date=22 February 2014 |url-status=dead |work=European Down Syndrome Association |access-date=7 February 2014 }}</ref> Many are able to live semi-independently,<ref name=Steph2010/> but they often require help with financial, medical, and legal matters.<ref name=Nelson2011/> Those with mosaic Down syndrome usually have better outcomes.<ref name=Nel2010>{{cite book| vauthors = Nelson MR |title=Pediatrics|year=2011|publisher=Demos Medical|location=New York|isbn=978-1-61705-004-6|page=88|url=https://books.google.com/books?id=8wE1dAYxGhoC&pg=PA88|url-status=live|archive-url=https://web.archive.org/web/20170123082430/https://books.google.com/books?id=8wE1dAYxGhoC&pg=PA88|archive-date=2017-01-23}}</ref>

Individuals with Down syndrome have a higher risk of early death than the general population.<ref name=Hick2012/> This is most often from heart problems or infections.<ref name=Wei2010/><ref name=Malt2013/> Following improved medical care, particularly for heart and [[gastrointestinal problem]]s, the life expectancy has increased.<ref name=Wei2010/> This increase has been from 12 years in 1912,<ref name="Urbano2010108">{{cite book | vauthors = Urbano R |title=Health Issues Among Persons With Down Syndrome|url=https://books.google.com/books?id=QbHL8qrgfCoC&pg=PA108|date=9 September 2010|publisher=Academic Press|isbn=978-0-12-374477-7|page=108|url-status=live|archive-url=https://web.archive.org/web/20150512112441/http://books.google.com/books?id=QbHL8qrgfCoC&pg=PA108|archive-date=12 May 2015}}</ref> to 25 years in the 1980s,<ref name=Wei2010/> to 50 to 60&nbsp;years in the developed world in the 2000s.<ref name=Malt2013/><ref name=Nelson2011/> Data collected between the 1985–2003 showed between 4–12% infants with Down syndrome die in the first year of life.<ref name=Gam2012/> The probability of long-term survival is partly determined by the presence of heart problems. From research at the turn of the century, it tracked those with congenital heart problems, showing 60% survived to at least 10&nbsp;years and 50% survived to at least 30&nbsp;years of age. The research failed to track further aging beyond 30 years.<ref name="Steph2010" /> In those without heart problems, 85% studied survived to at least 10&nbsp;years and 80% survived to at least 30&nbsp;years of age.<ref name=Steph2010/> It is estimated that 10% lived to 70 years of age in the early 2000s.<ref name=Rubin2013/> Much of this data is outdated and life expectancy has drastically improved with more equitable healthcare and continuous advancement of surgical practice.<ref>{{Cite web |title=Survival Rates Improving for Patients with Down Syndrome and Congenital Heart Defects |url=http://www.cardiosmart.org/news/2016/7/survival-rates-improving-for-patients-with-down-syndrome-and-congenital-heart-defects |access-date=2023-03-31 |website=CardioSmart |language=en}}</ref> The [[National Down Syndrome Society]] provides information regarding raising a child with Down syndrome.<ref>{{cite web|title=Where Should I Go From Here?|url=http://www.ndss.org/Resources/New-Expectant-Parents/Where-Should-I-Go-From-Here/|access-date=19 December 2015|url-status=live|archive-url=https://web.archive.org/web/20151222115201/http://www.ndss.org/Resources/New-Expectant-Parents/Where-Should-I-Go-From-Here/|archive-date=22 December 2015 | work = National Down Syndrome Society }}</ref>