Editing Androgen insensitivity syndrome (section)

== Society and culture ==

In the film ''[[Orchids, My Intersex Adventure]]'', [[Phoebe Hart]] and her sister [[Bonnie Hart]], both women with CAIS, documented their exploration of AIS and other intersex issues.<ref name="Hart">{{Cite web|url=http://www.orchids-themovie.com/index.html|title=Orchids: My Intersex Adventure |last=Hart |first=Phoebe | name-list-style = vanc |publisher=hartflicker Moving Pictures|archive-url=https://web.archive.org/web/20171211183007/http://www.orchids-themovie.com/index.html|archive-date=2017-12-11|url-status=dead}}</ref>

Recording artist Dalea is a Hispanic-American Activist who is public about her CAIS. She has given interviews about her condition<ref>{{Cite web|url=http://vadamagazine.com/entertainment/arts/challenging-perspectives-interview-dalea|title=Challenging Perspectives: Interview Dalea|last=Carter|first=Sophia | name-list-style = vanc |date=31 May 2014|publisher=Vada Magazine|access-date=23 January 2017}}</ref><ref>{{Cite web|url=http://www.cosmopolitan.com/sex-love/q-and-a/a30357/what-its-really-like-to-be-intersex/|title=What It's Really Like to be Intersex|last=Peikoff|first=Kira | name-list-style = vanc |date=22 August 2014|website=Cosmopolitan|access-date=23 January 2017}}</ref> and founded Girl Comet, a non-profit diversity awareness and inspiration initiative.<ref>{{Cite web|url=http://www.daleamusic.com/girl-comet.html|title=All about 'Girl Comet'|website=Dalea Music |language=en|access-date=2017-01-24|archive-url=https://web.archive.org/web/20161225151547/http://www.daleamusic.com/girl-comet.html|archive-date=2016-12-25|url-status=dead}}</ref>

In 2017, fashion model [[Hanne Gaby Odiele]] disclosed that they were born with androgen insensitivity syndrome. As a child, they underwent [[intersex medical interventions|medical procedures relating to the condition]],<ref name="interAct">{{cite web | url = http://interactadvocates.org/wp-content/uploads/2017/01/PRESSRELEASE-HannesAnnouncement.pdf | title = International Fashion Model Hanne Gaby Odiele Reveals She is Intersex; Announces Partnership with interACT Advocates for Intersex Youth to Raise Awareness About the Importance of Human Rights Protections for Intersex People Worldwide | work = [[Interact Advocates for Intersex Youth|interACT]] | date = January 23, 2017}}</ref> which they said took place without their or their parents' informed consent.<ref name="dazed2017">{{Cite news| issue = 250| last1 = Faye| first1 = Shon| last2 = Balzary| first2 = Clare| last3 = Wyman| first3 = Emma| last4 = Jawara| last5 = Sobol| first5 = Susie| last6 = Shelley| first6 = Noah | name-list-style = vanc | title = Hanne Gaby Odiele| work = [[Dazed]]| date = 2017| url = http://www.womenmanagement.com/hanne-gaby-odiele-dazed-confused-spring-2017/| access-date = 2017-05-30| archive-url = https://web.archive.org/web/20180907110245/http://www.womenmanagement.com/hanne-gaby-odiele-dazed-confused-spring-2017/| archive-date = 2018-09-07| url-status = dead}}</ref> They were told about their intersex condition weeks before beginning their modelling career.<ref name="dazed2017" />

In the 1991 Japanese horror novel [[Ring (Suzuki novel)|''Ring'']] and its sequels, by [[Koji Suzuki (writer)|Koji Suzuki]] (later adapted into Japanese, Korean, and American films), the central antagonist [[Sadako Yamamura|Sadako]] has this syndrome, as revealed by Dr Nagao when confronted by Ryuji and Asakawa.<ref>{{cite book | chapter = Chapter 11-12 | isbn = 9780007331574 | date = 2015-10-06 | publisher = HarperCollins | first1 = Koji | last1 = Suzuki | title = Ring | translator-first1 = Robert B. | translator-last1 = Rohmer | translator-first2 = Glynne | translator-last2 = Walley}}</ref> Sadako's condition is referred to by the earlier name "testicular feminisation syndrome".

In [[House (season 2)|season 2]], episode 13 ("Skin Deep") of the [[House (TV series)|TV series ''House'']], the main patient's [[testicular cancer|cancerous testicle]] is mistaken for an ovary due to the patient's undiscovered CAIS.<ref>{{Cite web|url=https://www.youtube.com/watch?v=2ry6hn9twow|title=I AM A GIRL! House M.D.|website=[[YouTube]]|date=2020-01-15|access-date=2022-07-01}}</ref> The episode has been criticized for its medical inaccuracy as well as its stigmatizing and offensive portrayal of CAIS.<ref>{{Cite web |title=House Gets It Wrong {{!}} Intersex Society of North America |url=https://isna.org/node/1008/ |access-date=2024-06-14 |website=isna.org}}</ref>

In season 2 of the [[MTV]] series [[Faking It (2014 TV series)|''Faking It'']], a character has CAIS. The character, Lauren Cooper, played by [[Bailey De Young]], was the first intersex series regular on American television.<ref>{{Cite web|url=http://www.hollywoodreporter.com/live-feed/faking-canceled-carter-covington-interview-892656|title='Faking It' canceled; Carter Covington interview – Hollywood Reporter|website=[[The Hollywood Reporter]]|date=2016-05-16|archive-url=https://web.archive.org/web/20160516011652/http://www.hollywoodreporter.com/live-feed/faking-canceled-carter-covington-interview-892656|archive-date=2016-05-16|access-date=2019-02-11|quote=What the show will really be known for is Lauren's coming out as intersex and being the first series regular who is intersex on television}}</ref><ref>{{Cite web|url=https://www.bustle.com/articles/40063-faking-it-season-2-spoilers-reveal-that-lauren-is-intersex-thats-a-huge-step-forward|title='Faking It' Will Make LGBT History in Season 2|last=Kay|first=Ariel | name-list-style = vanc |website=Bustle|date=16 September 2014 |language=en|access-date=2019-02-11}}</ref>

In [[CSI: Miami (season 8)|season 8]], episode 11 ("Delko for the Defense") of the [[CSI: Miami|TV series ''CSI: Miami'']], the primary suspect has AIS which gets him off a rape charge.{{citation needed|date=August 2020}}

In series 8, episode 5 of ''[[Call the Midwife]]'', a woman discovers that she has AIS. She attends a [[cervical smear]] and brings up that she has never had a period, and is concerned about having children as she is about to be married. She is then diagnosed with "testicular feminisation syndrome", the old term for AIS.<ref>{{Cite web|url=https://www.radiotimes.com/news/tv/2019-02-10/call-the-midwife-what-is-testicular-feminisation-syndrome/|title=Call the Midwife: What is Testicular Feminisation Syndrome?|website=Radio Times|language=en|access-date=2019-02-11}}</ref>

===People with AIS===
* [[Kitty Anderson (activist)]]<ref name="interface">{{Cite web |url=https://www.interfaceproject.org/kitty-anderson/ |title=Kitty Anderson – Reykjavík, Iceland |website=[[Interact Advocates for Intersex Youth#Interface Project|Interface Project]] |date=October 2017| access-date = 2018-11-22}}</ref><ref name="amnesty">{{Cite web |author=Amnesty International |title=Understanding the 'i' in LGBTI |access-date=2018-11-22 |date=October 25, 2016 |url=https://www.amnesty.org/en/latest/news/2016/10/intersex-awareness-day/}}</ref>
* [[Eden Atwood]]<ref>{{Cite web|title=Eden Atwood|url=https://montanakids.com/cool_stories/famous_montanans/atwood.htm|access-date=2021-10-23|website=Montana Kids|publisher=Montana Office of Tourism}}</ref>
* [[Bonnie Hart]]<ref name="Hart"/>
* [[Phoebe Hart]]<ref name="Hart"/>
* [[Maria José Martínez-Patiño]]<ref name=Cole>{{cite book|last=Cole|first=Cheryl L.|editor=Kay Schaffer|others=Sidonie Smith|editor-link2=Sidonie Smith|title=The Olympics at the Millennium: Power, Politics, and the Games|chapter-url=https://books.google.com/books?id=nMzYdZpk8qMC&pg=PA138|access-date=2 March 2015|year=2000|publisher=Rutgers UP|isbn=9780813528205|pages=128–146|chapter=One Chromosome Too Many?}}</ref>
* [[Hanne Gaby Odiele]]<ref name="miller2017">{{cite web | url = https://www.usatoday.com/story/news/nation/2017/01/23/model-hanne-gaby-odiele-reveals-she-intersex/96622908/ | title = Model Hanne Gaby Odiele Reveals She Is Intersex  | last = Miller | first = Susan | work = [[USA Today]] | date = 23 January 2017}}</ref><ref name="BBC News">{{cite web | url = https://www.bbc.co.uk/news/world-europe-38730291 | title = Model Hanne Gaby Odiele reveals she is intersex to 'break taboo'  | work = [[BBC News]] | date = 24 January 2017}}</ref>
* [[Santhi Soundarajan]]<ref name="thappad">{{cite web| url = http://thappad.in/petition/shanti/ | title = #FairTreatment for Shanthi Soundarajan | work = Thappad |year = 2016}}</ref><ref name="huff2016">{{cite web|first=Sonam |last=Joshi |url=http://www.huffingtonpost.in/2016/08/09/why-we-should-join-the-campaign-seeking-justice-for-runner-shant/ |title=Why We Should Join The Campaign Seeking Justice For Runner Shanthi Soundarajan |website=Huffingtonpost.in |access-date=2017-03-02 |archive-url=https://web.archive.org/web/20170317113808/http://www.huffingtonpost.in/2016/08/09/why-we-should-join-the-campaign-seeking-justice-for-runner-shant/ |archive-date=2017-03-17}}</ref>
* [[Miriam van der Have]]<ref name="vice2014">{{cite web | url = https://www.vice.com/nl/article/duizenden-nederlanders-passen-niet-in-het-biologische-hokje-man-of-vrouw-312/ | title =Duizenden Nederlanders passen niet in het biologische hokje man of vrouw | last = Punt | first = Anne | work = [[Vice (magazine)|Vice]] | access-date = 2017-01-12 | date = August 28, 2014}}</ref>
* [[Kimberly Zieselman]]<ref name="goodh">{{Cite web| last = Fogle| first = Asher| title = Falling In Between: Inside the lives of intersex women| work = [[Good Housekeeping]]| access-date = 2017-08-05| date = October 21, 2016| url = http://www.goodhousekeeping.com/life/a40787/intersex-stories/}}</ref>

====People with Complete androgen insensitivity syndrome====
* [[Georgiann Davis]]<ref>{{cite web | url = http://www.interfaceproject.org/georgiann-davis/ | title = Georgiann Davis | work = [[Advocates for Informed Choice#The Interface Project|The Interface Project]] | date = November 7, 2012}}</ref>
* [[Seven Graham]]<ref name="Independent Special Report">{{cite news|url=https://www.independent.co.uk/news/uk/home-news/special-report-intersex-women-speak-out-to-protect-the-next-generation-8974892.html |archive-url=https://ghostarchive.org/archive/20220507/https://www.independent.co.uk/news/uk/home-news/special-report-intersex-women-speak-out-to-protect-the-next-generation-8974892.html |archive-date=2022-05-07 |url-access=subscription |url-status=live|newspaper=[[The Independent]]|title=Special report: Intersex women speak out to protect the next generation|first=Sarah|last=Morrison|date=30 November 2013|access-date=19 November 2015}}{{cbignore}}</ref>
* [[Alicia Roth Weigel]]

====People with Partial androgen insensitivity syndrome====
* [[Tony Briffa (politician)|Tony Briffa]]<ref name="Cr Tony Briffa">{{cite web | url = http://briffa.org/about | title = About Tony | work = Briffa.org | date = 2012 | access-date = 2020-12-28 | archive-date = 2014-04-06 | archive-url = https://web.archive.org/web/20140406012528/http://briffa.org/about | url-status = dead }}</ref><ref name="transcript">{{Citation
| title = Involuntary or coerced sterilisation of people with disabilities in Australia: Thursday 28 March 2013
| location = Canberra
| date = 28 March 2013
| last1 = Senate of Australia
| last2 = Community Affairs References Committee
| url = http://www.aph.gov.au/hansard
| author1-link = Senate of Australia
}}</ref>
* [[Favorinus|Favorinus of Arelate]] has been described as having partial androgen insensitivity syndrome.<ref name="retief">{{Cite journal| volume = 93| issue = 1| pages = 73–76| last1 = Retief| first1 = F P| last2 = Cilliers| first2 = J F G| title = Congenital eunuchism and Favorinus| journal = South African Medical Journal| date = 2003| pmid = 12564336| url = http://www.samj.org.za/index.php/samj/article/viewFile/2019/1278}}</ref><ref>Mason, H.J., Favorinus’ Disorder: Reifenstein’s Syndrome in Antiquity?, in Janus 66 (1978) 1–13.</ref>
* [[Small Luk]]<ref name="time">{{cite news | url = http://www.timeout.com.hk/gay-lesbian/features/72091/interview-we-talk-to-intersex-individual-dr-small-luk-about-her-gender-struggles.html | title = We talk to intersex individual Dr Small Luk about her gender struggles | publisher = Time Out Hong Kong | access-date = 2020-12-28 | archive-date = 2016-05-29 | archive-url = https://web.archive.org/web/20160529011535/http://www.timeout.com.hk/gay-lesbian/features/72091/interview-we-talk-to-intersex-individual-dr-small-luk-about-her-gender-struggles.html | url-status = dead }}</ref>
* [[Eliana Rubashkyn]]<ref>{{cite news|url=http://www.inmediahk.net/node/eliana|title=專訪：前跨性別難民Eliana（國際特赦組織香港分會人權雜誌春季號）Interview: Former Transgender Refugee Eliana (Amnesty International Hong Kong) Human Rights Magazine Spring Issue)|date=28 April 2016}}</ref><ref name="3news">{{cite web| title = Gender refugee hopes for NZ citizenship| url = http://www.3news.co.nz/tvshows/3d/gender-refugee-hopes-for-nz-citizenship-2015072616| publisher = 3 Degrees - TV3 New Zealand| date = 26 July 2015| access-date = 23 December 2015| archive-url = https://web.archive.org/web/20151225151833/http://www.3news.co.nz/tvshows/3d/gender-refugee-hopes-for-nz-citizenship-2015072616| archive-date = 25 December 2015| url-status = dead}}</ref><ref>{{cite web | url = http://www.kienyke.com/historias/el-purgatorio-de-una-transgenero-victima-de-un-pasaporte-con-sexo-masculino/ | title = El purgatorio de una transgénero víctima de un pasaporte con sexo masculino | first = Alejandro | last = Vesga | date = 11 July 2015}}</ref>
* [[Sean Saifa Wall]]<ref name="wall2016">{{Cite web| last = Wall| first = Sean Saifa| title = Love, complexity and inter-sectionality| work = [[Intersex Day]]| access-date = 2017-01-19| date = November 8, 2016 | url = http://intersexday.org/en/love-complexity-intersectionality/}}</ref>
* [[Sogto Ochirov]]<ref>{{Cite web |last=один |first=Номер |title=Бурятский лучник полжизни провел в чужом теле |url=https://gazeta-n1.ru/news/society/111724/ |access-date=2022-05-30 |website=gazeta-n1.ru |language=ru}}</ref>