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Glycogen storage disease
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== External links == * [https://agsdus.org AGSD]. - Association for Glycogen Storage Disease. A US-based non-profit, parent and patient oriented support group dedicated to promoting the best interest of all the different types of glycogen storage disease. * [https://agsd.org.uk/ AGSD-UK] - Association for Glycogen Storage Disease (UK). A UK-based charity which helps individuals and families affected by Glycogen Storage Disease by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events. * [https://www.iamgsd.org IamGSD] - International Association for Muscle Glycogen Storage Disease. A non-profit, patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide. * [https://worldpompe.org IPA] - International Pompe Association. (Pompe Disease is also known as GSD-II). A non-profit, federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. * [https://www.euromacregistry.eu/ EUROMAC] - EUROMAC is a European registry of patients affected by McArdle Disease and other rare neuromuscular glycogenoses. * [https://research.sanfordhealth.org/rare-disease-registry CoRDS] - Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry for all rare diseases. They work with patient advocacy groups, including IamGSD, individuals and researchers. * [http://www.raredisorders.ca/ CORD] - Canadian Organization for Rare Disorders (CORD) is a Canadian national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. * [https://rarediseases.org NORD] - National Organization for Rare Disorders (NORD) is an American national non-profit patient advocacy organization that is dedicated to individuals with rare diseases and the organizations that serve them. * [https://www.eurordis.org EURODIS] - Rare Diseases Europe (EURODIS) is a unique, non-profit alliance of over 700 rare disease patient organizations across Europe that work together to improve the lives of the 30 million people living with a rare disease in Europe. {{Medical resources | DiseasesDB = | ICD10 = {{ICD10|E|74|0|e|70}} | ICD9 = {{ICD9|271.0}} | ICDO = | OMIM = | MedlinePlus = | eMedicineSubj = | eMedicineTopic = | MeshID = D006008 }} {{Carbohydrate metabolic pathology}} {{Authority control}}{{Diseases of myoneural junction and muscle}}{{Myopathy}} [[Category:Inborn errors of carbohydrate metabolism]] [[Category:Hepatology]] [[Category:Rare diseases]] [[Category:Diseases of liver]] [[Category:Muscular disorders]] [[Category:Metabolic disorders]]
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